An update on responses to my ranty open letter to DUK about the lack of support and information given to newly diagnosed T1s, many of whom are denied carb counting information, or specifically told NOT to count(?!?)
It is amazing that the NHS are happy to spend money on treating those diabetics who suffer with raised Hba1c and associated problems but they will not spend money on teaching carb counting v insulin to diabetics so that they achieve a better balanced lifestyle.
I’m glad I was taught the basics in 1976 which haven’t really changed. I’m also glad that I didn’t listen to the “oh you can eat what you want” 10 years on. Yes carb counting can be a hassle and yes I do get it wrong but by taking care of what I eat and inject I hope to live for a few more years yet without complications.
Exactly @mustard – I’m sure I’ve got here today without complications in part by following the carb counting rules as they were taught back in ’77. And I’m sure that there are quite a lot of people who were diagnosed in the 80’s/90’s who were told to eat what you want who have put themselves in the complications category because of it.
[Equally, there are people who get complications but have had perfect control all their lives, and others who have lived with high HbA1Cs for years and have no complications. But they are the exception.]
Ive never been taught anything by the nhs i have found the generel standard of care i recieve is appalling. I even left hospitol thinking it was only sugar from sweets etc and not carbs that effect diabetes. I get terrible advice on how much i should inject. The nurses tell me to inject a 10th of the insulin i actually need. Then tell me to just try it and run with bs of 20+. So tempted to go Bupa but i guess that is pritty expensive with pre existing conditions!
Blimey @cbbc11! That’s crap. My care up the Royal Infirmary Edinburgh post-diagnosis was very good – it was quick, but very thorough. I just took a shed load of notes and asked a lot of questions so it wasn’t a problem. But if you’re not taught how to carb count how the heck can anyone manage type one diabetes?
Dare I say that we need to put some advice out to those without decent support? Of course it would need to be considered very carefully but the basics could be covered without any one left requiring hospital admission or sudden death due to following out advice?
A list of good carb counting books may be useful. Tips for those due to start the pump. Advice re pregnancy and menopause. What to do when ill. Stress. God the list is endless.
@mustard – I think the best way forward is to have useful forums like this and others where the pancreatic masses can encourage, support and suggest. The realms of specific advice tailored to an individual is best left to authors / publishers with professional indemnity insurance and DSNs who know what they’re talking about!