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I have just had word from my lovely Consultant that I have the funding for a year of CGMs.
I wil now have to think about where I’m going to put them in.
At night I find my signal gets lost quite a lot, unless the sensor and the pump are plugged in the same side – ie I have my insulin going in my right leg, the pump lying on that side, and the sensor also on the right leg. If I put it on the left leg, I lose the signal.
I know you, Alison, use your back – but I have to lie on my back, and our bed is quite soft, and find anything on my back sticks into me. I cannot imagine the signal penetrating my entire body, either.
Where on earth else is there, as I want to preserve as much room as possible for my insulin access – because I’m quite slim, veins on my legs prevent many places being used. My stomach is not an option as I am allergic to the tapes there.
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Hurrah, that’s excellent news @lizz and if they’re only funding for a year, I assume that means you’ll be cured by October 2013?
I always wear my pump and sensor on the same side like you. If I wear it in my back, I clip my pump to the side of my waistband rather than the front, that way the signal doesn’t get blocked by my body in the night.
Have you tried your bum? I’ve not, because I quite like to use it for infusion sets but I know others have. I know some people use their arms too, although the thought of it makes me feel a bit queasy.
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Thanks, Alison.
Ah – my bum – it is all also in contact with the bed. Can’t imagine it not being painful, or pushed in.
I could do my arm – that doesn’t make me feel queasy… hmmm.
Can’t wear pjs – always a nightie, so no waistband.
My Consultant made the same point – do they expect me to have a miraculous cure? But doesn’t think it will be hard to extend the funding.
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@lizz I put my sensors into my side just above waistband height, almost into my back but not quite. They face outwards so that I’m not pressing them into my back when I lie down. I put my infusion sets in the same area and haven’t had trouble with the signal being lost. It seems to be a safe place to put them.
I can’t use my legs for sensors as I need crutches to walk and seem to ;
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@alison arrrghh! The posterior!
Ok I don’t have cgm but I gather the sensors are more prominent than an infusion set … And that gives me the heebie jeebies.
I think I’m still scared by the helpful book I was given 18 odd years back with a smiley face suggesting I bend in a funny way, grab a handful of flesh & inject in a delicate area to maintain site rotation.
… Never seemed wise, comfortable or like cricket to me!
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@furrypaul I’ve always injected in my bum, plenty of space to aim at. Its one of my favourite spots for infusion sets too. You don’t know what you’re missing
@lizz I go just above or just below the waistband of my clothes – some of us are obviously blessed with a bit of spare flesh!
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@furrypaul, that made me smile, I remember a cheerful booklet I was given years ago for finding injection sites and yes I do still follow the advice of creasing myself over sideways in the hunt for a bit of flesh to stick all the necessary bits of pump and sensor in. My backside is strictly off limits.
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Great news Lizz! how did you swing that. Not sure where you go for your D – my lot seem to have hardly heard of CGM and don’t appear to even have one to lend out!
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BRI @mike – where do you go? I see Lis Jones, but there is aso Helen John in the diabetes nurse specialist bit. They are both fab. i have one lent one at the minute – I think they have others. My Consultant is the wonderful Dr. Natasha Thorogood.
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Oh. We go to the same place. And see all the same people.
Maybe they just like you better than me?
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I expect so. I am rather wonderful. As you know. I suspect your yellowness puts them off.
Do you have problems with control? I have no warning symptoms and fall really quickly – they have only given me CGM because of that – the lend it if I go away on my own as I tend to become unconscious at night. And because my graphs look like a child’s scribble, up and down, with the lows all in different places and ditto the highs, there is no pattern, CGM is the only way to keep me safe. They have fought very hard to get it from an intransigent BANES committee. I live in BANES rather than Bristol.
If you do have hard control I am at a loss to understand why they won’t try to get it for you…
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There shouldn’t be a need for really difficult control to borrow a CGM on a one off basis – they’re a great tool for getting an insight into what’s happening when you’re not looking (ie between blood tests, overnight) and for spotting patterns you hadn’t seen before. If the patient is committed to doing that, I don’t see why they should be denied that tool to try and improve their control.
Although I suspect you’re right @lizz , the likelihood they just don’t like @mike
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This is terrible Internet bullying of poor @mike
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Hold on, @mike started it by suggesting they liked Lizz more than him. I was just being supportive by agreeing with him
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So @mike‘s bullying himself now? This is the sort of awful manifestation of “Broken Britain” that should be stamped out.
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Let’s be rational here, we’re all pump users so the NHS like all of us more than 90% of diabetics.
The NHS jus happen to like Liz & Alison more than most I suspect cake was involved somewhere!)
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Cake? I’m sure I don’t know what you mean.
I have suffered a lot with @mike bullying himself. I don’t know how much longer I’ll be able to bear it. It really is most unfair on us all.
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I’m so *very* sorry to be such a burden to you all. My self-loathing is reaching new and more profound depths.
…Oh hang on that’s probably not helping…
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