Please Help!

Home Forums Living with type one Please Help!

This topic contains 29 replies, has 8 voices, and was last updated by  Alison 7 years, 3 months ago.

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  • #9989

    Anonymous

    Dear all,

    I am an Msc health psychology student conducting research into the factors that influence HbA1c levels in people with diabetes.
    I am seeking people with diabetes to complete a short online survey related to your diabetes management and your general thoughts, feelings and attitudes on a day to day basis, as well as some demographic information.

    I have also been diabetic for 20 years and am therefore trying extremely hard to conduct studies such as these to help improve diabetes management and understanding.
    If you would like to participate or would like to find out more, please follow the link below. The information sheet will provide you with detailed information regarding the process of the study.
    http://sdu-surveys.herts.ac.uk/diabetes2

    For further information please contact the researcher, Chloe Redshaw (details below).

    Thank you for your time!

    Yours faithfully,

    Chloe Redshaw

    c.l.redshaw@herts.ac.uk

    Supervisor: Dr. Nicholas Troop (n.a.troop@herts.ac.uk)

    This study has been approved by the School of Psychology Ethics Committee at the University of Hertfordshire

    Registration Protocol Number: PSY/07/11/CR

  • #12865

    Annette A
    Participant

    Done it. I’d be interested in seeing the results at the end of it – will you post a summary on here, chloe?

  • #12866

    Alison
    Keymaster

    Done. I second that on the results. I’ve always believed people’s attitude towards their diabetes affects their control, but it would be great to see what a proper analysis says.

  • #12867

    Tim
    Keymaster

    The options on Question 17 seems a bit odd – “Almost” & “Never” are two different options, should they have been combined as “Almost never”?

  • #12868

    Tim
    Keymaster

    Done it. Hell, I seem to have a self-confidence bordering on psychopathic arrogance. Go me!

    And, yes, Chloe, do post up a summary of results when you’re finished.

  • #12870

    Cecile
    Participant

    Dunnit…almost bearable, until the bits without “Sometimes” :)

  • #12872

    Anonymous

    Completed. gosh I feel a bit down now!! Its raining and I’ve got no control over it no wonder my b/s is up today!
    good luck

  • #12873

    Anonymous

    Emmm.. Done!

    I’m off to end the misery! ???

  • #12874

    Anonymous

    Hi everyone! Thank u for completing the survey really appreciate it!..i only realised the almost and never being in a separate column after i had launched the link and i can’t edit it :-(..perhaps i could use my blood sugar being high as an excuse haha!
    Of course i will be happy to upload the results..it wont all be analyses etc until mid september…i have also reviewed work on the gender differences between diabetics and and text messaging as an intervention for reminding and encouraging adolscent diabetics if anyone is interested in any of that!

    Chloe

  • #12875

    Anonymous

    @diabeticpsychologist – I had real difficulty with the question regarding “recommendations” since I can’t remember the last time I received any recommendations of the type you list (other than “don’t forget your next appointment”). I hope it doesn’t mess up your results but recommendations just don’t happen (to me, at least) in the way your question implies.
    I look forward to seeing the results.

  • #12876

    Anonymous

    oh no don’t worry it shouldn’t :-)…it is taken from an already established self-care schedule….i think to be honest it’s just trying to get across if you take very goiod care of yourself and do the correct things

  • #12877

    Tim
    Keymaster

    Chloe – we’re always interested in diabetes stuff! So, yes, post up any and all results and research you’ve done. Yay!

  • #12878

    Alison
    Keymaster

    The recommendations stuff is something I always struggle with too @nigho. My guy reaction to questions about whether I follow my insulin regime as instructed is to start a long rant about how I decide and implement my own insulin regime based on my own experience, I don’t blindly do as I’m told. But then I calm down a bit and try to look at what the question’s getting at, and settle on saying “yes” because I do follow the recommendations, it just happens to be me that makes them. The question does seem to assume a disempowered, compliant patient though, rather than an independent, well informed patient making their own decisions.

  • #12879

    Tim
    Keymaster

    Oh hell, you’ve set @alison off on one now. ;-)

  • #12880

    Annette A
    Participant

    I tend to veer towards the school of thouht that recommendations are just that – recommendations. Not rules or instructions, but rather suggestions. I take on board recommendations, then go away and make my own decisions as to what I do (often not what the recommendation says, because they are the ‘one size fits all’ type of thing).
    I keep the Madagascar penguins in mind – ‘Just smile and wave boys, just smile and wave.’

  • #12881

    Alison
    Keymaster

    Brilliant, I am most definitely a penguin!

  • #12882

    Anonymous

    @diabeticpsychologist – ok, I see. In that case feel free to change my “N/A” answers to “yes, I do all the right things as often as possible” :D

    @tim – “lol” is a much overused expression but I really did when I read your comment about @alison even though I agree with everything she said :D

  • #12883

    Alison
    Keymaster

    @nigho I have to admit I LOL’d too, but I wasn’t going to give @tim the satisfaction of knowing his abuse provoked a response, it’d only encourage him :-)

  • #12884

    Annette A
    Participant

    @alison – weren’t you a kangaroo at one stage? Are you climbing the rungs of the animal kingdom until you finally reach the ultimate level? (Although I think possibly penguins might be that top level…)

  • #12885

    Alison
    Keymaster

    @annette Yes. And don’t forget the armadillo https://www.shootuporputup.co.uk/2010/06/kangaroo-hba1c/

    I suspect the truth is that rather than climbing the rungs of the animal kingdom, it’s more likely that I’m just slowly going mad ;-)

  • #12887

    Annette A
    Participant

    Oh, dont do it slowly. Rush at it headlong. It worries people more… :-)

  • #12888

    Anonymous

    the point about reccomendations is definitely something i will bring up when discussing my results…when i read it i kind of skipped the word reccomendations and interpreted it as “following medication regimes that give me the best outcome” …as my nurse told me to administer 1 uni for every ten carbs….i have to give myself 5 in the morning for my 6g carb yoghurt!

  • #12889

    Cecile
    Participant

    @alison: You’re no penguin – you’ve been pumped&CGMmed into pandamonium, you bamboozling Brit! :)

    @diabeticpsychologist: Your “reccomendations” are not recommendable ;)

  • #12894

    Anonymous

    seems there are lots of grumpy diabetics out there! a lot of forums have said i can’t post my study on there..some saying “they have not got time for me to post it!? they sit and moan about their diabetes but dont have time for someone who is trying to help make diabetes life better!!! grrrr rant over! :-)

  • #12895

    Alison
    Keymaster

    @diabeticpsychologist How sad. You stick with ShootUp, we’re a bit strange at times, but we know a good thing when we see it :-)

  • #12896

    Tim
    Keymaster

    @diabeticpsychologist Ah, some people are very precious about their forums and don’t like “outsiders” posting stuff; however, being liberal sandal-wearing, yoghurt-eating, organic-t-shirt-wearing Guardian readers here we have a more free and easy attitude (unless you’re like that Nazi guy I had to ban a few months ago…!)

  • #12897

    Anonymous

    haha i cant tell if you are joking…did u really have a nazi diabetic lol!?? hmm one email i received back was quite rude..i got a bit teary..but then realised my blood sugar was low and therefore was being a bit too over emotional!! …he told me my post would not be appropriate for his forum as it was more about what people could do with their diabetes in relation to food and in future to ensure i use subject heading when messaging people!…i considered sending him a bundle of emails back all with no subject heading on..but then decided i am far too mature for that lol

  • #12898

    Tim
    Keymaster

    @diabeticpsychologist – I never joke (well, I’m certainly never funny). The Nazi guy was saying that poor diabetes care in the UK was due to too many immigrants and that sort of guff. He was an idiot; and as this place is a benign dictatorship not a democracy (see our legals: https://www.shootuporputup.co.uk/resources/the-legals/) I booted him off the site! :-) Hurrah!

    I think that, in general, you need a great deal of patience to run a public forum and I can see why some admins get stroppy – there’s an endless stream of spam, emails from marketing companies asking us to plug stuff (see: https://www.shootuporputup.co.uk/about-us/tips-for-agencies-contacting-shoot-up/) and what-not. Thankfully a) Alison & I have endless patience and b) Shoot Up is populated exclusively by lovely people – the idiots haven’t found us yet! ;-)

    Quite how this thread has turned into a gentle rant about other forums I don’t know… :-)

  • #12899

    Anonymous

    i am aware i am far to sensitive! haha
    i see a lot of stuff on some forums trying to sell ” the miracle cure”..the advertisements usually starts with something along the lines of “my great aunt suffered in for years until she drank cow urine..and now she is cured of diabetes!!!”..i personally think we should all give it a try!!

  • #12900

    Alison
    Keymaster

    Cow urine you say? I must make a trip to the countryside next weekend.

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