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Avatar of Alison

by Alison

My first musical HbA1c is in

5 April, 2012 in Living with diabetes

Six months ago I started learning to play the baritone and at the time it made me realise quite how terrifying it is to be launched into a whole new world. Learning about music seemed about as complex as working out how to carb count, adjust basal rates and identify hypos.

Alison producing unusually musical hot air with Maghull Wind Orchestra

The one advantage music has over diabetes is that the consequences of giving up on it don’t involve harming any important limbs or organs. Despite not having the potential expiration of my kidneys as a motivator, I have indeed managed to keep up the practice and am still playing the baritone in Maghull Wind Orchestra.  And this weekend saw the first big test. The first musical HbA1c to see whether the good notes and the terrible notes are balancing out to give a musical performance that is in some way suitable for human consumption.

And it seems it is. We got a great review in the local press for a concert we performed last weekend and no one seemed to notice the beginner in the midst. Full credit must go to the husband who decided that having a diabetic wife wasn’t enough of a challenge for his patience, so he also took on the mammoth task of teaching me to play.

I’ve learned that basal rates need reducing by about 20% for rehearsals, to offset all the huffing and puffing involved in creating a note. But the stress of a concert is enough for me to keep basal rates at normal levels and remain pretty steady. Just like diabetes there have been some very bad days where I can’t play the right note at the right time for love nor money. Then the next day, I can do a full rehersal with no excursions out of musical target range. But the overall result is positive. And there the diabetes/music analogy must end, before it is stretched so far it becomes completely tuneless.

Avatar of Tim

by Tim

The greatest diabetes-related ABBA-song-preference survey in the world

9 March, 2012 in Mildly amusing, The Blog

Complex statistics, yesterday

Complex statistics, yesterday

Avid account holders at your soaraway Shoot Up will be aware that when you sign up you are asked to tell us what your favourite ABBA song is. Some people thing that this is a clever anti-spam mechanism, others a complex physiological test of some description. In actual fact it’s a piece of paper-thin whimsy of little or no merit which has no greater meaning whatsoever.

Despite this I thought it would be interesting (read: I had nothing better to do) to extract the preferences from the mySQL database which runs your soaraway Shoot Up and collate the data to create the single greatest diabetes-related ABBA-song-preference survey in the world.

The extract gave us about 4,000 data records, which was a great result. When we removed the spam accounts and songs that only had one vote we were left with 121 records. We get a lot of spam accounts you see.

Anyway, the Shoot Up boffins had enough data to generate us the results below. For the sake of accuracy I have expressed each song preference as a percentage to at least eight  decimal points.

Dancing Queen > 35 > 28.92561983%
Waterloo > 23 > 19.00826446%
The Winner Takes It All > 10 > 8.26446281%
Fernando > 8 > 6.611570248%
Take A Chance on Me > 8 > 6.611570248%
Super Trooper > 6 > 4.958677686%
Money Money Money > 5 > 4.132231405%
Does Your Mother Know > 4 > 3.305785124%
Mama Mia > 4 > 3.305785124%
Knowing Me, Knowing You (ah-haaaaaa) > 3 > 2.479338843%
Lay All Your Love on Me > 3 > 2.479338843%
Chiquitita > 2 > 1.652892562%
Eagle > 2 > 1.652892562%
Gimme Gimme Gimme (A Man After Midnight) > 2 > 1.652892562%
I Had A Dream > 2 > 1.652892562%
Thank You For the Music > 2 > 1.652892562%
The Day Before you Came > 2 > 1.652892562%

Sadly Dancing Queen came in as a clear winner. I don’t really like Dancing Queen; despite its title, it has a plodding, slightly dreary four/four beat, which make it a pain to dance to when it’s inevitably played at wedding discos. Waterloo – tragically relegated to second place – is in my view a far better song – dum de dum de dum de dum daa daa! Not only is it great to dance to, it also teaches you something “…the history book on the shelf / is always repeating itself”. A salutary lesson to us all.

Behind the two champions came “Winner Takes It All” – which is good, but a little depressing – and “Fernando”, which is just an odd song.  “Take A Chance On Me” (that’s all I ask of you) romped in next with “Super Trooper” – a song with utterly inexplicable lyrics – following closely behind.

So there we have it – thank you, ABBA, for the music and thank you, Shoot Up readers, for helping us to build such a world class dataset. Knowing Me, Knowing You – ah haaaaaa!

What? The? Stats?

What? The? Stats?

Avatar of Alison

by Alison

A whole new world

13 October, 2011 in Living with diabetes

I’ve decided to learn to play a musical instrument. My family will quickly tell you that this is well outside my current skillset. I’m not renowned for my sense of rhythm or pitch. However, the husband plays the tenor horn in a wind orchestra and in a pub after a recent concert I was bullied/coerced/persuaded/pressured into learning. Lots of enthusiastic cries of “the husband can teach you and then you can practice with us” and a little bit of beer lead to me agreeing to learn to play the baritone.

Baritone

The instrument through which ears are being tortured

I don’t remember my diagnosis with diabetes, but learning a musical instrument has given me some sense of the complete bewilderment that happens when you are dragged into a world you didn’t really know existed. While the new diabetic grapples with basal rates, carb ratios, hypos and hypers I am being told to tighten my embouchure, control my diaphragm (which I’m yet to locate) and to believe that one day I will be able to translate the dots on the page into some form of enjoyable music.  This is like being told at diagnosis that one day you will be able to carb count a whole meal without the aid of a calculator and several reference books. It’s very hard to believe at the time.

There are lots of new things to do. Those who aren’t pancreatically challenged consider it abnormal for someone to stab themselves in the finger to illicit blood or to inject random areas of fat throughout the day. Those of us who aren’t musical are perplexed by the revelation that some people are able to beat a rhythm with their feet, whilst their fingers press down the valves and their mouth blows in the air to create the notes. Changing my first infusion set was not this confusing, I’m sure of it.

The sense of bafflement isn’t helped by the fact that people keep moving the goalposts. Like when you learn to carb count and you learn what insulin you need for 10g of carbs. You start to get confident, this isn’t so hard after all. And then they tell you that actually 10g of carbs from an apple will be absorbed at a different rate to 10g from a pizza, so really it’s a lot harder than it first appears. The same happens in music. You think you’ve got the hang of the counting thing and then they change the rhythm you’ve got to count in. It’s a cruel world.

One of the marvellous things about diabetes is that you get to start again every day. Just because you were a 15 all day yesterday doesn’t mean the same has to happen today. Music appears to be similar. Last night’s rendition of Twinkle Twinkle Little Star was quite frankly an embarrassment to nursery rhymes. Today’s however was a shining example of wonderment, assuming you like your nursery rhymes belted out from a lower brass instrument. Things change quickly in the worlds of diabetes and music.

So, as I blunder into this new musical world it does make me realise how much I take my diabetes knowledge for granted because I have no memory of having to learn all this stuff. I’m quite grateful for that. If I’m not very good at the baritone I can always hide it under the table and forget all about it, sadly the same doesn’t apply to the diabetes.

Avatar of Tim

by Tim

Ask a diabetic rock star!

24 February, 2011 in Interviews

Shoot Up develops sideburn envy

Shoot Up develops sideburn envy

Brett Ryan Stewart is a gifted young, up and coming American musician who writes and plays some good music described as “indie/pop peppered with a southern influence”. You can listen to his stuff over on his MySpace page here.

As well as being irritatingly talented, Brett is also lucky enough to have Type One diabetes and, for some bizarre reason, took the time to be asked questions about being a diabetic rock star by the soaraway Shoot Up mob.

Geek us out – tell us about your preferred basal / bolus, pump / MDI insulin regime and how you manage your diabetes

I just switched from MiniMed to OmniPod. I have only great things to say about MiniMed, but I have got to say, the tubeless OmniPod system is unbeatable. ESPECIALLY on stage. There’s enough wires on stage already. Was nice to get rid of one of ‘em!

Usual basal rate is 1.20/hr.  I have a few settings for different infusion sites. For instance, my legs and arm don’t absorb as well, so I’ll crank ‘er up to 1.40/hr when I use those spots. At the gym, I’ve got a temp basal saved for -50% for 1.5 hours.

I eat whatever I want, and constantly. My appetite knows no limit. Still rock an A1c of under 6.0 though. How’s that for some Meep Zorp info?

When were you diagnosed with diabetes?

Age 9.  The Doc said I had the ‘flu. I was drinking lots of liquids, which for me, meant Welch’s Grape Soda.  Finally, Mom took me to the hospital when I got worse. I walked in with a BG of 981 [54ish in British!] Beat that! [Bloody hell! -Tim]

Describe your music in 3 words.

Not Justin Bieber.

Does diabetes affect your rock and roll lifestyle? For example, does it prevent you from chucking televisions out of hotel windows and having drink-fuelled orgies with hot chicks, etc?

Only when I’m hypo, in which case I get my musical partner, Chris Tench, to chuck the TV on my behalf.  I don’t drink much alcohol these days and Ovaltine isn’t known to be quite the same “social lubricant” as booze…

Chris has seen first hand how highs and lows affect me, musically speaking. Particularly the highs. A few years back, when we just began working together, and before he was aware of my mood swings that come with the fluctuating sugars, he had the privilege of watching me flip out while recording vocals for our band Wide Eyed Sleeper.

After a few takes that were cut short by me throwing the headphones across the room and cursing the songs, yelling “It’s shit! It’s all shit!” He, very Zen-like and patiently asked “You feelin’ ok?” I check my sugar, and of course I was dancing around 300 [16ish in British].

That’s when I had to calm down and explain the birds and the bees of diabetes with him. Now, when we’re writing or recording, if I start in with the “it’s all shit” routine, he insists on me checking my sugar. He’s usually right.

Have you ever had a hypo mid gig? If so, did it result in a complete gig stoppage, or just an interlude while sugaring yourself up again?

Typically the stress of the show shoots it upwards. That definitely affects my performance. But actually I nearly passed out from hypo this past June at a show. The last song of the set, suddenly sounded, umm, funny. I couldn’t remember words. Guitar was feeling heavy all of a sudden. Sweat. Lot’s of sweat. Luckily it was the last song, I got through it, then tossed some glucose tabs down in a jif.

Brett safely behind bulletproof glass

Brett safely behind bulletproof glass

Where do you wear your pump when you are on stage?

When I had the MiniMed, I’d have to strap it to my belt in the back. With the OmniPod it’s great because it can be anywhere!

Who would win in a fight between you and Nick Jonas?

Nick Jonas initially. I’d let him pin me so I could get close enough to his pump to replace his insulin with 7-Up.

Do you think Diabetes-Pop is going to be the next hot niche music sub genre?

God willing. At the rate of diagnosis’ these days, won’t be long ’til we’re mainstream.

Do you tune your instruments/songs to your pump alarm? (Perhaps we pumpers could record a Christmas single – X Factor eat your heart out!)

Not yet, and the only reason is I’m afraid of being pigeonholed in the Diabetes-Pop genre.

Seeing that the hand you use to squeeze and stroke strings with tends to get callused, do you have to set your finger pricker on a deeper depth to get to blood, or don’t you milk that hand at all?

I’ve had the pricker set at the highest setting for years. I use ‘em all for blood. No milking required.

We have a long running thread on the forums made up of diabetes-related limericks. We’ve found that it’s very difficult to rhyme anything with pancreas or insulin. Is this why you have so few songs about diabetes?

Well damn, now that you mention it, it IS difficult to rhyme! That’s up there with “orange”.

I think I’ve subconsciously written about diabetes, as a matter of fact. When I was a teenager, my band had a song called “Why Am I So Tired” where I say something to the effect of “am I high or am I low”… It was written with my late friend, Paul, who nicknamed me “Diabeto”

Who are your diabetic heroes?

Having grown up outside of Philly, it was Bobby Clarke from the Philadelphia Flyers.

Now it’s everyone I’ve met who lives with it and doesn’t put up with any BS from their pancreas.

Do you know who Nicolae Paulescu is?

Pancreatine sounds like an energy drink.

Plugging people's albums on Shoot Up? Never.

Plugging people's albums on Shoot Up? Never.

Do you, by any chance, have a new album out soon?

Whatever would lead you to think that, by golly?

February 28th, I’ll be releasing my 2nd full length album, called “Tilt“.

Let me say this about it…

The theme of this record is one of acceptance. Living life on life’s terms, and the peace and clarity that comes once the mountain towards this acceptance has been climbed, and you’re at the summit. For me, this journey has involved a wide array of personal experience, and it goes without saying that living with this disease has been an enormous factor. I wouldn’t say there are any direct allusions to Diabetes, but I’d be lying if I said it didn’t add some of the weight to the words.

Many thanks to Brett for taking time out from his busy schedule to answer our silly questions; do go have a listen to some of his stuff – it’s actually quite good! (“Quite good” – you can tell this is a diabetic blog and not a music review site, eh?)