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NICE to rate trusts on implementing new treatments

29 August, 2012 in news

This dog has long been concerned by the fact that insulin pumps were approved by NICE in 2003, yet in some parts of the country getting hold of a pump is still tougher than teaching a dog to carb count.

It seems NICE have woken up to the fact that making up the rules isn’t enough, you also have to monitor how well people stick to them to drive take up. From September they’ll be publishing an “innovation scorecard” so humans can see which trusts are adopting new treatments and drugs most quickly. And then use that information to challenge their hospital as to why they’re lagging behind, or go walkies to the hospitals that are providing the latest treatment.

For more detail, see INPUT’s post on the subject here.

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by Alison

We don’t do pumps

11 March, 2011 in Kit & equipment, Living with diabetes

This bewildering cry is still heard on occasion in the antiquated backwaters of diabetes care. If you’re dealing with such out-dated, antediluvian attitudes to providing pumps, a little bit of help is at hand. (Don’t get too excited, no one won the lottery and agreed to give everyone a free pump, but it’s a little step in the right direction. )

The diabetes big guns – JDRF, Diabetes UK  and Input have got together with the NHS Technology Adoption Centre to create a guide to help dinosaurs who currently don’t provide pump therapy in their clinics yet have desperate diabetics who meet the NICE criteria and are crying out for a pump.

If your clinic already offers a pump service, but you can’t personally get one, this won’t help. But if your clinic doesn’t offer a pump service at all, this is aimed at getting them moving in the right direction.

The idea is that you can share the guide with your favourite neanderthal clinician and give them a gentle shove towards the age of enlightenment. There’s actually quite a bit of good stuff in there that clinicians and PCTs will find useful around business cases and costing models to get funding to set up a pump service, guidance on how to actually run a decent pump service etc.

As some people may understandably find it slightly difficult to dropkick their reluctant healthcare team into this brave new world, there’s even a nice little letter you can download  and give to your clinician, signed by the big guns, explaining the guide and why they should be interested. A casual, “Hello Dr, I saw this and thought of you” from your side would probably suffice.

The full guide is available here.

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by Tim

Partying with humalog

10 March, 2010 in exercise, Living with diabetes, travel

Clubbing - Belgian style

Clubbing - Belgian style

Last weekend I met up with two old school friends in the party capital of Europe, uhm, Brussels. While it may have a reputation for bureaucracy and dreary boringness, Brussels does actually have a great night-life, so soon after arriving we went out to hit the pubs and bars of the capital of the EU. Woo!

After sampling some (by “some”, I mean “quite a lot of”) cherry wine in a bar that used to be brothel, we headed off to Les Halles Saint-Gery and the famous club night “Stop Suffering and Start Dancing” which was being held in large, sweaty, crowded, smoky nightclub. As always when clubbing I had the issue of what to do with my insulin while I partied like it was 1999.

As I’ve mentioned before I carry all my diabetic kit around in one of a variety of funky man-bags. But the problem is you can’t check said bag into the cloakroom as you’ll inevitably need to test your blood glucose or inject at some point between arriving at midnight and leaving at 4am. So the only obvious solution was to head onto the dance floor, bag in tow.

So if you happened to be at Les Halles Saint-Gery last Saturday night and some git in the very centre of the dance floor, who danced like some sort of escaped lunatic (and was accompanied by a ginger monster and bearded freak*) kept bashing you with a brown leather Visconti bag then I can only apologise profusely. I’m sorry, I really am, but I had no other choice.

While dancing like a loon I was inevitably burning off calories (and producing my own bodyweight in sweat – yum!) leading to the obvious risk and tedium of sorting out a hypo. So I duly checked my BG (the strip light on the Freestyle Lite proved very useful for testing in a club that was seemingly only lit with flashing strobes). I was pleased to see that appeared to have created a perfect equilibrium between the energy I was using up and the carbs in the beer I was glugging down all night.

Who would have thought it? A bottle of Satan beer (yes, it is called that. If you can find it, try it as it’s very nice. Though at 8% it is rather strong…) every hour perfectly balances an hour of dancing like a maniac.

That beer can be put to this use is, I think, a very important discovery. So I will be applying to Diabetes UK for funding to conduct a great deal of further research. Naturally we will need plentiful supplies of beer and night clubs with good music. Any diabetic volunteers want to help out?

* It’s worth noting that Dave (said “ginger monster”) is the person who came up with the name of this blog and, indeed, the very tasteful sub-title. For this he deserves credit. It’s also worth nothing that Mat (said “bearded freak”) has contributed nothing.

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by Tim

Pump training

22 October, 2009 in Kit & equipment

A needling problem

A needling problem

Avid readers of your soaraway Shoot Up will know that I’m currently on an 18-month long NHS waiting list for a pump. You’ll also recall I’m not too chuffed about this for obvious reasons. As, on the whole, I’m generally a pain in the arse I’ve been writing polite letters to everyone concerned about this sorry state of affairs.

I’ve generally had sympathetic replies from my MSP, the chief pump honcho at the hospital and the Chief Executive of the health board wrote to me the other day to say he’s asked someone to investigate and report to him about pump provisioning. It does seem that people are generally supportive, which is nice to know but – of course – not actually of any practical help to diabetics.

Certainly in my area the main sticking point appears to be the lack of funding – not, as you might expect, for the pumps and supplies themselves but for the training required for new pump users. I do agree that pumps are slightly more complicated than administering MDI, as there seems to be a greater possibility of complete cock-up with a pump compared to MDI. Though, as we all know, it’s very easy to utterly mess up with MDI – I do it quite often!

My health board undoubtedly has some great DSNs and the training I received when I was first diagnosed was relatively brief but was of a very high standard. But, unfortunately, there just doesn’t seem to be enough of them to go around. Currently their policy is to train about 5 or 6 new pump users every two months. This just isn’t enough throughput to increase Scotland’s woefully low number of pump users up to levels that are on a par with the rest of the country, let alone the rest of the western world.

If training genuinely is a bottleneck (and not just a slightly cunning feint to avoid funding new pumps without breaking the rules) then there seems to me to be a possible solution in the form of a public-private initiative in which everyone could win.

So here it is – what about the NHS partnering with the pump manufactures to provide training? The pump manufacturers will, obviously, know exactly how their pumps work, how they’re best used and will have a wealth of experience in supporting their customers in using their products. Everyone knows that diabetes is a nice earner for our favourite pharmaceutical companies and so the cost of training could be recouped on a cost-recovery basis or even as loss-leader set against the ongoing purchase of pumps and supplies.

Pump manufactures would surely have a reasonable amount of available resource to chuck at training (especially if it benefited them through long term and ongoing sales) and such an arrangement would free up NHS staff to do what they do best – supporting diabetics.

But might this lead to reduced patient choice? If, for example, Small Manufacturer A wasn’t able to supply training while Large Manufacturer B did, then might there be an inherent bias in the NHS to encourage diabetics to get a pump from Large Manufacturer B as they could then save on training costs?

I don’t think so, as any such arrangement would necessarily reduce the training overhead for the NHS allowing them to concentrate their resources on supporting patients who wanted, for whatever reason, to use a pump from Small Manufacturer A.

In this scenario everyone wins – patients get training and pumps quickly; the NHS’s training costs are reduced; the pump manufacturers get a loyal and going supply of lucrative diabetics.

But what about the issue of the bifurcation of training? After all, training from a pump company might not be at the same standard as NHS training? (Of course, it might be better). But given that standards of training and pump provision vary wildly around the UK, I can’t see that this would make any significant difference from the current position.