Shoot Up or Put Up

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by Alison

Life after birth

15 May, 2013 in Living with diabetes, Pregnancy

It’s three weeks now since we started playing at being parents, and we’re having lots of fun. My caesarean scar has healed beautifully, which is of course amazing as most clinicians seem to expect that it should be oozing green pus and festering nicely by now, me being diabetic and all. I still can’t lift anything heavier than the baby, but I am able to walk much better now. The first time I stood up after the surgery I honestly thought all of my internal organs were about to fall out through my scar. I’m now starting to believe that this won’t actually happen.

I think my diabetes is best described as “interesting” at the moment. It’s a generally well behaved toddler who is prone to more tantrums than usual. A bit like an older sibling who’s had their nose put out of joint by the arrival of a new baby in the house. I think a third of the problem is down to the massive changes in hormones, a third is down to breastfeeding, a third is down to me struggling to believe that I no longer need a bucket of insulin for every meal and the fourth third is down to the fact that as you can probably tell, I’m a bit tired and have other, much more enjoyable things to focus on.

Breastfeeding has surprised me. I innocently expected the impact on diabetes to be relatively predictable. I know, I know, I’m a naïve fool. Generally my blood sugar drops an hour or so after I feed, but not all the time. Some of the time it has no impact whatsoever. And sometimes the drop comes later than 1 hour post feed. So I’m running at a reduced basal rate of 80% and eating 10-15g of carbs with each feed. And then I cross my fingers and more often than not it works out ok.

Continuing with the “I didn’t expect it to be like this” theme, my brain is struggling to come to terms with post birth diabetes. It’s spent 9 months running diabetes with military precision and attacking carbs with ever increasing amounts of ammunition. Now I don’t have the time, inclination or mental ability to do the military precision side of things, but my brain hasn’t quite caught up. So I’m over-correcting highs and over-bolusing for meals, because I simply don’t believe 5 units is enough to cover that sandwich when a month ago I needed 20 units for the same meal.

Generally though, the diabetes is as well controlled as it needs to be for now. The CGM helps a lot because it squawks at me when I go too high or low, meaning that I don’t forget completely about the pancreas business. Because to be honest, when you’ve got sick down your back, wee up your arm and a crying baby, blood tests aren’t really top of the agenda.

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by Alison

A caesarean with diabetes – special requests

7 May, 2013 in Living with diabetes, Pregnancy

I have to say, having Eva by caesarean was a thoroughly pleasant experience. A couple of weeks before she was born we decided that Eva would be coming out via the sunroof so that gave us time to do a bit of planning. I had two big concerns – controlling my diabetes during and after the op, and making sure Eva didn’t go hypo once she was born. So we did a bit of reading, and decided there were three things we wanted to happen:

Controlling diabetes during a c-section

I wanted to maintain control of my diabetes throughout rather than go on a sliding scale, so we had a chat with the anaesthetist who’d be doing my op. He had his own views on how I should manage my diabetes, but we didn’t agree with them. He wanted me to aim to go into theatre at around 7 or 8, which was fine by me. He suggested I achieve this by reducing my basal to 80% the night before and then to 0% as I went into theatre to avoid going hypo once the baby was born.

I agreed with what he was trying to do – it made perfect sense to play safe and aim to be around 8 for the op. High enough to avoid hypos, but low enough not to cause the baby to mass produce insulin in response to the amount of glucose she’s getting from me and then end up low when that glucose supply stops at birth. I was also just as scared as he was of a post birth hypo – once the placenta has been delivered all those hormones that have been causing insulin resistance for months suddenly disappear, and insulin requirements return to pre pregnancy levels almost immediately.

But I didn’t think his plan would work. So, I explained my plan to him. I’d run at normal basal rates the night before the op, because the stress of knowing I was having a baby in the morning would keep me plenty high enough without reducing basal rates. I’d also monitor it closely through the night and correct if required. I was nil by mouth but we agreed I could use Hypostop gel to treat lows if needed. To avoid the post birth crash, I’d reduce my basal rates to pre pregnancy levels 2 hours before the c-section started, meaning that by the time they got the placenta out, I’d have the right levels of insulin in my system.

He agreed, and it worked. I entered theatre as an 8 and left as a 7, staying around a 7 for the next few hours. He came to visit me the next day to double check what I’d done because he wants to adopt that as his diabetic plan from now on. Isn’t it nice when a doctor actually listens?

Preventing post-birth lows

I controlled my sugars throughout delivery to try and prevent any post birth lows, but I was conscious that there was no guarantee that would work, and anyway, 8 is still higher than a non diabetic woman would run at so there was still some risk of hypos to the baby. For that reason I decided to express colostrum in the week prior to birth, so that we’d have food available for Eva as soon as she was born, without having to resort to formula.

Daddy has a first cuddle before feeding Eva some colostrum while Mummy's being stitched back together

Daddy has a first cuddle before feeding Eva some colostrum while Mummy’s being stitched back together

So we headed into theatre with several tiny syringes filled with less than a teaspoon each of colostrum. We explained to the midwife that if the baby needed food before I could breastfeed we’d like her to have this rather than formula. The midwife said regardless of blood sugar, she’d recommend we give the baby the colostrum anyway, so she could have food as soon as possible. That seemed sensible, so as soon as Eva was born and handed to Geoff, the midwife helped him give Eva her first feed of breastmilk via a syringe. They were putting me back together for the next half hour so I couldn’t feed Eva, but it meant she got some decent food straight away even though her blood sugars were fine. As soon as I was stitched up, they handed her to me and she started feeding within 5 minutes. It worked a treat – we were both relaxed because I wasn’t panicking that she’d has no food and could go low and she wasn’t starving hungry.

When to cut the cord

The final request we had was for the surgeon to delay cutting the umbilical cord until it had stopped pulsating. Practice varies, but the current NICE guidelines state that the cord should be cut as soon as the baby is born. My initial concern was that the baby gets all its glucose from me, so to reduce the risk of lows, I’d like it to get every last bit of glucose before being cast adrift. If they leave the cord attached for a few extra minutes, until it stops pulsating, it’s estimated the baby gets an additional 30% of blood in her system. This just seemed to make sense to me, and further reading showed that it also seemed to reduce the risk of anaemia in the baby, because they kept hold of more blood so didn’t have to manufacture it themselves.

All back together again, Mummy finally gets a cuddle

All back together again, Mummy finally gets a cuddle

We spoke to the surgeon about it and said we’d like her to only cut the cord once it had stopped pulsating. She said it wasn’t standard practice in a c-section, but she was happy to do it. And then admitted if it was her baby, she’d do the same. Interestingly, a few days after Eva was born I saw this article on the BBC saying that pressure was mounting for this to be adopted as standard practice.

Thankfully everything went to plan and we couldn’t have wished for a better experience. I felt like I understood what was happening, and everything that was important to me was being done. A brilliant patient experience coming from an informed patient and a team who were willing to listen. Great stuff.

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by Alison

Introducing Eva

5 May, 2013 in Living with diabetes, Pregnancy

Is everyone still out there? We’ve been cocooned in the wonderful world of our tiny baby for the last fortnight, but now it’s time to come out into the big wide world and say hello.

Eva_1Alison_Eva

Baby Eva was born on 24 April and cleverly disproved the myth that all diabetics have massive babies by being a perfectly normal 6lb, 14oz.

She’s perfect, completely untouched by the pancreatic challenges she’s been exposed to over the last 9 months. Our only concern is the development of her little fingers – she has us wrapped that tightly around them I don’t know how they’ll have space to grow.

The c-section was actually a really pleasant experience which I’ll write up soon, and the drugs have helped manage the pain since. We’ve been incredibly well looked after by Geoff and my parents so I’ve not done much beyond feeding and cuddling for the last couple of weeks and it’s been a real pleasure. The dairy farm is now running at full production and I’m just starting to get to grips with how breastfeeding impacts blood sugars. Eva_2

So there we have it, the successful conclusion of a diabetic pregnancy. Probably the hardest and at times the most stressful thing I’ve ever done, but also the most worthwhile and rewarding. Diabetes and pregnancy is daunting, but with dedication and hard work it is doable, so if you’re thinking about it don’t be put off by the horror stories, you can do it.

For now, we’re retreating back into our cocoon and enjoying being ridiculously happy, just the three of us.

 

Avatar of Alison

by Alison

The ultimate combo: steroids, diabetes and pregnancy

22 April, 2013 in Living with diabetes, Pregnancy

As I’m having a c-section at 38 weeks, the baby needed to have a shot of steroids before she’s born to make sure her lungs are nice and strong when she arrives. I was surprised by this as I thought 38 weeks was past the date when steroids are required, but according to the latest Royal College of Obstetricians & Gynaecologists guidelines, it’s generally recommended that all babies to be born by c-section before 39 weeks are given steroids. So that’s what we did.

The one advantage of the whole situation was that because everyone was so busy telling me “steroids will play havoc with your diabetes” it did stop them from telling me that all diabetics have massive babies for a short while at least, so that made a pleasant change. Unfortunately I was unable to locate the havoc prevention setting on my pump, so instead I took to the interweb and asked people via Facebook, Twitter and various forums to share their experiences of how steroids impacted their diabetes so I could make a plan.

The general consensus for steroids in pregnancy seemed to be that they make you really high from around 2 hours after you have the first injection up until around 48 hours after the last injection. And the peak insulin resistance seems to be between 9 and 15 hours after the injection. And helpfully, that varies from person to person. Great stuff, just what you need when you’re pregnant. The hospital kindly offered a sliding scale to manage this for me, you’ll be surprised to hear that a diabetic control freak like me declined that option. I decided to manage it myself on pump and CGM.

I find with any form of insulin resistance, once you let BGs get high it’s a mammoth task to get them down again. So I decided on an aggressive strategy of pre-empting BG rises and increasing basal rates well in advance so in theory I should be able to prevent any shocking highs. Overall, I’m very pleased with how it went if I do say so myself. Here’s the detail from day 1:

  • 22.00, BG 5, temp basal rate (TBR) 100% (ie normal basal rate) – 1st steroid injection
  • 23.00, BG 5, TBR 110% – increased basal in anticipation of BG rise starting 2 hours post injection
  • 00.30, BG 5.2, TBR 110% – holding steady
  • 02.30, BG 5.8, TBR 120% –  CGM shows BGs starting to creep up ever so slightly, gamble that this is the steroids starting to kick and increase temp basal
  • 04.00, BG 6.6, TBR 130% – increased temp basal in anticipation of peak insulin resistance starting in a couple of hours. Also took 1u correction as rate of BG increase was speeding up and I wanted to keep that as flat as possible.
  • 05.00, BG 7.4, TBR 130%
  • 06.00, BG 6.6, TBR 130% – temp basal seems to be holding things steady, stick at 130% and keep a close eye on it
  • 07.30, BG 6.3, TBR 130% – bolus for breakfast 30mins before eating. Increase breakfast bolus by 30% to accommodate steroids (this was a complete stab in the dark, in hindsight I’d probably increase by 50% and bolus about 45mins before)
  • 09.30, BG 11.4, TBR 130% – BG peaks post breakfast at 11.4, give a bit more bolus to try and get that down fast as I’m conscious the second steroids are due at 10.30 and I want to get it down before they start having an impact
  • 10.30, BG 10, TBR 150% – final steroid injection. Increase basal early to 150% in anticipation of them kicking in around 12.30 and my BG already being higher than I’d like
  • 11.30, BG 7.4, TBR 150% – BG coming down gently following aggressive post breakfast corrections

No, I didn’t get much sleep. And so it continued for a further 2 days. I kept monitoring and trying to anticipate the changes. And it seems being brave worked. Over the next 12 hours I increased basal rates to 170% and then eventually started reducing them back down as the resistance started to fade. I returned to normal basal rates about 36 hours after the second injection. I was expecting my aggressive approach to end up in me needing to eat to treat low BGs, but that only happened once when the resistance was starting to fade and I didn’t reduce my basal quick enough.

When I started thinking about how to handle steroids, this is exactly the kind of info I was looking for and I just couldn’t find it, so hopefully this might be of use to some other poor soul in my situation. In summary, I learned:

  • Try to anticipate the rise and increase basals early – shifting a high once you’re up there is always going to be harder than preventing it
  • I couldn’t have done this without a pump and CGM – the trend info on the CGM showing me whether I was rising or falling was invaluable. I gambled on basal rate increases based on tiny rising trends on the CGM – you simply couldn’t spot that on BG monitoring alone.
  • My obstetrician wanted to give me the steroids 2 days before my c-section. After a bit of reading I asked that we did them earlier, so that they’d have time to clear my system before the surgery. He agreed. If you have any choice (ie it doesn’t endanger the baby), I’d recommend getting the steroids out of the way early – otherwise you risk the steroid highs still happening while you’re giving birth and then clashing with the post birth insulin requirement crash. That would be a complete nightmare.

Good luck!