Setting the research agenda

By | 26 April, 2010

Read on – you need to do something here, it’s important.

I have on occasion had a cynical little rant about the relevance of some diabetes research to improving lives today.

I have also spent many a meeting in various diabetes forums expressing the need for us to research the day to day issues impacting people with diabetes.  A cure – like a lottery win and a trip to the moon – would be marvellous but not something I’m scheduling in my diary any time soon. What I’m really interested in is answering the slightly less sexy but still hugely useful questions about diabetes.  How do we get new developments in diabetes care into general use more quickly? What is the best way to help a teenager take over management of their own diabetes? Do low carb diets deliver long term diabetes benefits? ie is it worth me making the huge sacrifice that is giving up pasta?

So you can imagine my excitement when I saw this little beauty in Diabetes UK’s Balance magazine. The Type 1 Diabetes Priority Setting Partnership is trying to identify the most important research questions for the treatment of Type 1 diabetes. Hurrah!

People of the diabetes online community, please head on over to www.ukdrn.org/jlasurvey.html forthwith, or at least before 28 May 2010. This is your chance to have a say in the diabetes research agenda. It’s a really simple survey, they just want to know what questions you want answering about Type 1 diabetes. To actually be asking people with diabetes what research they’d like doing is sadly quite radical, so please seize the opportunity to have your say. We’re the experts in our own diabetes so make sure you share that expertise.

And once you’ve submitted your questions to the survey, if you fancy sharing them in the comments section below that would be great – I’m fascinated to know what questions people want answering.

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About Alison

Diagnosed with Type One in 1983 at the age of four, Alison's been at this for a while now. She uses Humalog in a combined insulin pump and continuous glucose monitoring system and any blood glucose meter as long as it takes five seconds or less.

3 thoughts on “Setting the research agenda

  1. Tim

    Top stuff – definitely worth adding one’s two-pennethworth. I’ve asked whether it can be demonstrated whether a) insulin pump therapy and 2) CGMS can reduce the frequency of long term complications.

  2. Annette A

    I asked also if CGM makes a difference, whether high carb diets necessarily lead to increased insulin resistance, and what the effect of hormones actually is on insulin resistance (as opposed to ‘yes, there’s an effect’ which is the current answer!)
    And my avatar’s gone walkies…

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