Comments on: Show me the money http://www.shootuporputup.co.uk/2009/07/27/show-me-the-money/ Comatose and rotting toes - the lighter side of insulin dependency Fri, 12 Mar 2010 17:49:03 +0000 http://wordpress.org/?v=2.9.2 hourly 1 By: About to start pumping? | Shoot Up or Put Up http://www.shootuporputup.co.uk/2009/07/27/show-me-the-money/comment-page-1/#comment-1227 About to start pumping? | Shoot Up or Put Up Wed, 04 Nov 2009 08:02:52 +0000 http://www.shootuporputup.co.uk/?p=517#comment-1227 [...] have a few friends starting on pumps soon so having previously discussed getting funding for a pump, choosing a pump and answering the top questions people ask about pumps, I thought a few top tips [...] [...] have a few friends starting on pumps soon so having previously discussed getting funding for a pump, choosing a pump and answering the top questions people ask about pumps, I thought a few top tips [...]

]]> By: Tim http://www.shootuporputup.co.uk/2009/07/27/show-me-the-money/comment-page-1/#comment-355 Tim Mon, 27 Jul 2009 19:06:25 +0000 http://www.shootuporputup.co.uk/?p=517#comment-355 Thanks for your input (no pun intended) Lesley - I think some PCTs are still in the dark ages. But one of the joys of Internet is that we can very easily share information, tips and knowledge - which can only be a good thing. Thanks for your input (no pun intended) Lesley – I think some PCTs are still in the dark ages. But one of the joys of Internet is that we can very easily share information, tips and knowledge – which can only be a good thing.

]]> By: Lesley http://www.shootuporputup.co.uk/2009/07/27/show-me-the-money/comment-page-1/#comment-354 Lesley Mon, 27 Jul 2009 16:58:18 +0000 http://www.shootuporputup.co.uk/?p=517#comment-354 Great article, Alison. Judging by some of the cases INPUT has dealt with recently, some healthcare professionals still don't understand the funding process for insulin pumps. In the case of something that has had NICE technology appraisal, the consultant CAN decide who the NHS will fund - ie everyone who has a clinical need for it. However, some consultants and DSNs are still saying there is no money available. And some bullying PCTs are threatening that if "you" have a pump, someone else will miss out on their life-saving operation... No-one should be bullied like this. If you need a pump, funding is provided. Speak to INPUT if you are being fobbed off. As you said, CGMS is another issue as it hasn't been appraised by NICE yet. Lesley www.input-diabetes.blogspot.com Great article, Alison.

Judging by some of the cases INPUT has dealt with recently, some healthcare professionals still don’t understand the funding process for insulin pumps. In the case of something that has had NICE technology appraisal, the consultant CAN decide who the NHS will fund – ie everyone who has a clinical need for it. However, some consultants and DSNs are still saying there is no money available. And some bullying PCTs are threatening that if “you” have a pump, someone else will miss out on their life-saving operation…

No-one should be bullied like this. If you need a pump, funding is provided. Speak to INPUT if you are being fobbed off.

As you said, CGMS is another issue as it hasn’t been appraised by NICE yet.

Lesley
http://www.input-diabetes.blogspot.com

]]> By: Alison http://www.shootuporputup.co.uk/2009/07/27/show-me-the-money/comment-page-1/#comment-345 Alison Mon, 27 Jul 2009 15:42:52 +0000 http://www.shootuporputup.co.uk/?p=517#comment-345 @Tim after 5 months of messing around I discovered that the PCT didn't really do anything unless I chased them eg I called them to ask where things were up to, they said they needed to speak to X. I called them a week later and they still hadn't spoken to X. Phoning daily soon got them moving! @Tim after 5 months of messing around I discovered that the PCT didn’t really do anything unless I chased them eg I called them to ask where things were up to, they said they needed to speak to X. I called them a week later and they still hadn’t spoken to X. Phoning daily soon got them moving!

]]> By: Tim http://www.shootuporputup.co.uk/2009/07/27/show-me-the-money/comment-page-1/#comment-343 Tim Mon, 27 Jul 2009 13:07:12 +0000 http://www.shootuporputup.co.uk/?p=517#comment-343 <a href="#comment-342" rel="nofollow">@Alison </a> You phoned them every day? I've said it before Alison - but I really don't want to ever get on the wrong side of you! @Alison You phoned them every day? I’ve said it before Alison – but I really don’t want to ever get on the wrong side of you!

]]> By: Alison http://www.shootuporputup.co.uk/2009/07/27/show-me-the-money/comment-page-1/#comment-342 Alison Mon, 27 Jul 2009 12:11:13 +0000 http://www.shootuporputup.co.uk/?p=517#comment-342 Hi Emma. It took me about 6 months from going into my consultant's office with all my arguments about why I needed it to actually starting to use it. During the final month I called the PCT daily to chase for a decision. As I said in the post, it isn't your consultant's decision as to whether the NHS will fund or not, they need to support you with the clinical case and you need to fight for the funding. Good luck! Hi Emma. It took me about 6 months from going into my consultant’s office with all my arguments about why I needed it to actually starting to use it. During the final month I called the PCT daily to chase for a decision. As I said in the post, it isn’t your consultant’s decision as to whether the NHS will fund or not, they need to support you with the clinical case and you need to fight for the funding. Good luck!

]]> By: Emma http://www.shootuporputup.co.uk/2009/07/27/show-me-the-money/comment-page-1/#comment-341 Emma Mon, 27 Jul 2009 11:59:28 +0000 http://www.shootuporputup.co.uk/?p=517#comment-341 Thanks for posting this! I'm just starting the battle for a CGM. I wonder if you could tell me how long it took you from when you first applied for a CGM until you were able to start up on it? I've asked my consultants numerous times about getting a CGM in the past 2 years, and I've always been greeted with "the NHS will never cover that". Thanks for posting this! I’m just starting the battle for a CGM. I wonder if you could tell me how long it took you from when you first applied for a CGM until you were able to start up on it?

I’ve asked my consultants numerous times about getting a CGM in the past 2 years, and I’ve always been greeted with “the NHS will never cover that”.

]]> By: Tim http://www.shootuporputup.co.uk/2009/07/27/show-me-the-money/comment-page-1/#comment-340 Tim Mon, 27 Jul 2009 08:02:46 +0000 http://www.shootuporputup.co.uk/?p=517#comment-340 Great article Alison! I have an appointment up at the ERI tomorrow about such things - I'll report back with my findings on the situation in Scotland. Great article Alison! I have an appointment up at the ERI tomorrow about such things – I’ll report back with my findings on the situation in Scotland.

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